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Aug 01, 2023NIDDK Central Repository 20th Anniversary Seminar & Workshop: Promoting Secondary Research to Accelerate Medical Breakthroughs and Innovation
Aug 20, 2023The workshop sessions are to highlight secondary use research that utilized resources generated from NIDDK-funded clinical research projects, review NIDDK's Data Ecosystem past, present and future, and launch a data challenge platform as part of the program's vision for the future.
The virtual meeting will review the NIDDK Central Repository program from its early beginnings to its current state and the vision for the future as an integral component of the NIDDK Data Ecosystem. Experts in the field and selected innovative secondary research works directly resulting from the use of Repository resources will be featured throughout the 2-day event.
We will engage a diverse group of stakeholders and multidisciplinary experts from the research community to promote Repository resources and the program's broad research portfolio. Repository staff will demonstrate the use of the web-based platform and provide guidance on procedures to gain access to resources. A preview of future release features will also be provided with the launch of a data-centric challenge at the close of day two encouraging all to join the secondary use research community Data Challenge targeting the student-trainee and early-stage investigator research community.
This activity is directly aligned with NIH and NIDDK's Strategic goals to maximize the value and impact of resources generated through NIH-funded research, advance the biomedical data ecosystem, and enhance data resources that facilitate research, catalyze the scientific discovery, and improve health outcomes.
September 19, 2023
Webinar
Registered participants will receive a link to join the webinar via email prior to the date of the event.
Program ContactRebecca Rodriguez, Ph.D.NIDDK301-451-0323
Parker Choplin, M.P.H., ICPBooz Allen Hamilton443-934-2983
Meeting LogisticsMark DennisThe Scientific Consulting Group, Inc.301-670-4990
Welcome and Opening Remarks Repository Team Welcome and Staff Introductions Session I: The NIDDK Central Repository (Then) Session II: The NIDDK Central Repository (Now/20th Anniversary) Session III: Hands-on Workshop: Accessing NIDDK Central Repository Resources Break Lightning Talk Session I: Methods for Biomarker Discovery in Diabetes, Kidney, and Urologic Diseases Session III: Challenges and Opportunities for Improving NIDDK/NIDDK-CR Data Resources—Panel Discussion Recap and Day One Closing Remarks Adjournment Day One Recap and Announcements Session IV: FAIR Principles and the 2023 Data Management and Sharing Policy Session V: Secondary Research to Accelerate Medical Breakthroughs and Innovation—Panel Discussion/Plenary Session Workshop II: Hands-on Workshop—NIDDK-CR Analytics Workspace Break Lightning Talk Session II: NIDDK-CR Data Secondary Analyses, Qualitative and Mixed Methods Studies Session VI: Supporting NIDDK-Funded Research and Expanding NIDDK's Data Ecosystem—Panel Discussion Closing Remarks Adjournment Webinar Program Contact Meeting Logistics